A Healthy Attitude: Living With M.E
Diane Shipley writes about her experiences as as an ill person in a well person’s world...
Miss Diagnosis
This is how things worked when I was a kid: you felt bad, you saw a doctor, they told you (or your mum/dad/primary caregiver) what was wrong and gave you treatment. Simple!
Get M.E, and suddenly you find out just how complicated getting a diagnosis can be. M.E is a diagnosis of exclusion, meaning once anything else they can think of (from cancer to scoliosis to the West Nile virus) has been ruled out, M.E can get ruled in. But that’s only the best case scenario. The worst case scenario would be - hi there! - me.
I understand, really I do, why I was told for four long years that I had clinical depression. When I first saw my GP I was so sleep deprived, exhausted, (and full of jet lag after a long flight) that I could hardly stop crying long enough to say my name. I was non compos mentus, completely cracked. If I’d been a doctor and seen myself, I would have shipped me off to the mental ward post-haste so I was lucky to escape with just a packet of Prozac. But when they - and nine other anti-depressants - did nothing, and when I complained of every classic M.E symptom under the sun (from daily diarrhoea - sorry, TMI?) to complete exhaustion after the tiniest amount of activity to severe PMS to memory loss and confusion (M.E is a neurological illness so it affects the brain, hormones, immune and digestion systems indiscriminately) shouldn’t someone have done more than made notes on my chart, mumbled, and told me it was all psychosomatic?
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